Association of Companies Focused on Rare Diseases (NAFIDER) had started its path from the similar examples on rare diseases and orphan drugs around the world and with the support of pharmaceutical companies that are active on this field, has been founded in İstanbul in 2018. The common goal of the member companies of NAFIDER is to study rare diseases in a single platform and it has been founded in 2018 with the motivation created by the need to diagnose and treat these diseases.



Mission: Bringing together all the shareholders with the purpose of increasing awareness about rare diseases, their diagnosis and management of rare diseases to contribute to creation of experience sources.


Vision: Becoming an effective, reliable, and productive association and doing works that are an example to the world.



  • AMRYT TURKEY İlaç Ticaret Limited Şirketi
  • ALEXION İlaç Ticaret Limited Şirketi
  • BIOMARIN İlaç ve Ticaret Limited Şirketi
  • PROCEUTICA İlaç Pazarlama ve Danışmanlık Anonim Şirketi



Executive Board

  • Executive Board Chair: Derya KÖKER – Alexion
  • Executive Board Vice Chair: Av.Dr.Elvan Sevi BOZOĞLU
  • Executive Board Vice Chair: Atilla TÜTÜNÇİM - Amryt
  • Bookkeeper: Zeynep Başak AKTUĞLU – Proceutica
  • General Secretary: Cem ERBİL – Biomarin


Supervisory Board

  • Abdullah Berat MEMİŞ
  • Azime Deniz ÖZDER ERLER
  • Mehmet Feridun İZGİ